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| Journal entries from 03/18/03 - 05/18/04 | |||||||||||||||||||||
| 05/18/04 | |||||||||||||||||||||
| We wanted to let you all know where we are right now with Jackson. Last week we found out that his cancer was back in the form of a tumor in his neck. We found out that it is a Reoccurring Neuroblastoma tumor and today we found out that it has not gone to his bone marrow yet, which is good. We are going to start treatment in the form of a pill on Wednesday. The pill is large and he has to take 30 a day for 7 days and then off for 14 days. Time is crucial since the size seems to be doubling every day. He will not be getting chemo or a central line in his chest at this time. We are going to see how the tumor reacts to the drug and the radiation. We were very direct with his doctor and she is not trying to put a band-aid on this, she is trying to cure it. The bad side still remains the same as last week. I asked her if anyone has ever survived this before and she said no, not yet. The tumor is treated, but one always comes back somewhere else. Eventually the body runs down and the fight has always been lost. I guarantee you that we will fight the fight of our life with the aid of modern and future medicine, and most importantly with prayer. If I sound callous, I am not trying to be, but I have grieved enough for now and plan to live each day to the fullest with my family and friends. Jackson knows that his cancer is back and that the battle is on again. He should get to finish his baseball season and the school year, and by the way in his last two baseball games he is 9 for 9. I had hoped that we had signed on to the web-site for the last time, but here we go again. So many have asked what they can do for us and we have but one request, please pray for a miracle, because that is what we need right now. |
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| 04/01/03 | |||||||||||||||||||||
| Jackson is doing very well. We are being very careful of the sun with him since his medication makes him allergic to it. He is doing great with his tutor and enjoying every day at home. Bob Toothaker is home and doing well recovering from the first brain surgery and getting ready for the next. We are so fortunate that both cases went as well as they did. This won't be the last time we sign on, but it will slow down now that things are going well and we are at home and closer to normal. To all of you that have been along with us on this unbelievable ride, we will never be able to thank you enough. I truly hope that by God's grace that you or your loved ones don't encounter a life threatening disease, illness, or accident, but if you do, you can count on our support. We had no idea that we had so many friends and that people were so good in the time of need. I wish everyone who faced such a challenge would have a support team like we did. The prayers that were spoken in the last ten months were obviously heard and we have a six year old boy at home to prove it. Jackson has a 50-50 chance of relapse for the next five years and we still pray daily that we get through this time with no set backs. But we try our best not to complain about the little things anymore, because we are right where we prayed to be, just nine months ago. Staci and I discussed Jackson's attitude just yesterday and we don't think it has changed one bit. His smile is just as big as it has always been. He will have some lasting scars and hearing loss to remind him of the time he battled cancer, but if that's all we are left with we thank God and will never forget those who got us here. To the doctors, nurses, family, friends, and those that didn't even know us, we owe you so much and your support has got us where we are today. Thank You So Very Much, Scott, Staci, Jackson, and Wyatt |
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| 03/18/03 | |||||||||||||||||||||
| Jackson has started his last round of treatment, the Retinoic Acid. It lasts for six months and has several side effects that we need to be careful of such as, allergic to the sun, possible hunger swings, moody, and worst of all, swelling of the brain. Lately, he has had severe headaches and throwing up, but the doctor thinks that it is the flu. He is doing very well with everything else and we can't wait for him to get the line out of his chest soon. We were reminded again by the doctor that he has a 50-50 chance of a relapse for the next five years, so that keeps us always cautious, but still moving on. I talked to Bob on Sunday and he is doing much better and the nine-hour surgery went well. They will have to have another one within a month to get the last fifteen percent of the tumor that remains. The doctor said that the tumor in his brain was the size of a pool ball. Bob came home today and will be recovering and getting ready for the next battle he faces. As for our life, we are replacing our deck and it has been one trial after another. Two days after we tore the old rotten one down, our insurance company made a surprise visit and took pictures. Later that week we got a notice in the mail that our insurance would be dropped in twenty days due to no deck. The building permit took 18 days to get and all of the wood was delivered wet, so we had to dry it before we stained it. To add to the problems, we are refinancing and the appraiser came and said he can't appraise without a deck. Not to mention the day he showed up there was wood all over the garage and inside the house trying to dry. I had just pulled a big stump out of the front yard and there was mud everywhere. Our house looked like we were the Beverly Hillbilly's and I don't think he was very impressed. |
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